Let me just give you a run down of how our last admission went. Drew woke up Thursday morning and was feeling pretty lethargic, but otherwise seemed happy. He just wanted to lay in bed and watch TV. I knew he was going to need blood, so I was hoping that that was all it was and not a fever coming on. I took his temp and it was 99, not high enough for us to have to go in, but something to keep an eye on since I knew his counts were bottoming out. Our homehealth nurse came and drew his normal scheduled labs and everything was low with an ANC of 0. I took his temp about an hour later and sure enough he was up to 101.

Again, let me remind you that we are in the ER because my child is severely immunocompromised and requires close monitoring for any type of infection and coverage with antibiotics and antifungals even without any known infection. But back to my question, "what's on 7?" Ready for this one? Both nurses and registration lady say, "infectious Disease." INFECTIOUS DISESE?! You're putting us on the INFECTIOUS DISEASE floor?!
As they were monitoring Drew's blood pressure to make sure it didn't drop too low, I asked if they wanted to check mine b/c I guarantee it was anything but low! After a lot of back and forth, it appeared that we really didn't have any other option and they assured us that they would get us down to 4 as soon as a bed opened up, hopefully later that night.
We made it up to 7 fine and held our breath through the hall (just kidding - kinda). We were in our own room and made sure our nurse knew that we were on high alert for any cross contamination or handling of things differently than we are used to. It's just that the nurses on that floor aren't used to handling a central line as often and aren't as familiar with administering his meds or TPN. Everything worked out fine even though they didn't get us down to 4 until the next day, but it was just added stress as I felt like I had to oversee everything.
His fever only lasted about 24 hours, so after another 24 hours being fever free, 48 hours of negative blood cultures and an ANC on the rise, we got to come home yesterday!
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