Diagnosis: Brain Tumor - Atypical Teratoid Rhabdoid Tumor (AT/RT)
Treatment:
Surgery - Total Gross Resection
Chemotherapy - Modified IRS-III (Dana Farber Protocol)
Radiation - Focal Proton Radiation to tumor bed (54 Gy)
Length of Treatment - June 2011 - August 2012
52 week Protocol
- every 3 weeks inpatient chemo (hospital stay ranged from 2-6 days for chemo)
- every other round consisted of intrathecal (IT) chemo (directly into spinal fluid)
- chemo continued simultaneously through 6 weeks of radiation
Treatment Related Complications:
Fever and Neutropenia (11 of 17 Rounds) - fever admits ranged from 2 - 12 days in hosp
Anemia and Thrombocytopenia - too many blood and platelet transfusions to count
Fungal Pneumonia - was subsiquentaly on antifungals for one year
Septic Shock - resulted in febrile seizure and 10 day PICU stay
Decreased cardiac function:
- altered final rounds of chemo to eliminate last 2 rounds of Doxarubricin
- recovered most of function and function remain in low normal range w/o medication
Alopecia - large area of permanent hair loss in radiation field
Foot drop - recovered Left, but Right still severe and requires AFO
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