Tuesday, September 20, 2011

6 Days 5 Nights

Monday, September 19, 2011

We are home from the hospital! This fever admit had us there for 6 days and 5 nights which was 1/2 the time we spent there after round 2. We were able to leave last night after another blood transfusion and got home just in time for me to get all of his meds going and then had to get up early enough to get all of his morning meds done in order to be at radiation by 6:45am! Drew has been fever free since early on Saturday and his blood cultures have all been negative since that first one that was positive. They sent him home continuing the IV antibiotics and he is still on the IV antifungals from our last episode with the pneumonia. We will continue with radiation for the next 4 weeks until that is done and we have an appointment with his doctor tomorrow, including labs, to try to determine when we will start this next round of chemo which is supposed to be the end of this week already.

Just some pictures from our week.

This was our ride to radiation during our stay.

Arriving at radiation. It was quite the ordeal to have to be transported.

We made a new friend with a new roommate this time. He was an 8 year old boy who had the same interests including video games and legos. We have been lucky enough to get a video game console almost every time we have been admitted, even though lately they are limited because someone has been stealing the actual game systems from the hospital. Yes you heard me right - someone is actually stealing the playstations and xboxs from the oncology ward at a children's hospital - unbelievable!

You can see how rosy Drew's cheeks are in this picture. I think his temp was down from almost 105 to 103, so he was really making an effort to want to play.

We had a surprise visit from Uncle Eric and Aunt Autumn. Drew was pretty happy to see them and so were we!

Drew was unhooked from all the monitors and IV's for a minute while we went downstairs to radiology to repeat a chest xray. When we got back to the room he wanted to switch beds, so here he is in the "comfy" beside chair that they call a bed for parents.

It can get fairly boring at times in the hospital, so you have to be creative finding things to do. Here Drew was playing hockey in the kleenex box with some lego pieces. I think in this picture he had ripped it open and was saying peek-a-boo!

Not the best lighting, but just a picture to show I do exist. We were down waiting at radiology and it was later in the evening so they weren't really open and all the lights were dimmed in the waiting area.

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