August 5, 2011
They checked labs this morning and some of Drew's electrolytes were a little low. Not a big deal, right? Well normally they would just add the electrolytes to his fluids that are already running, but the magnesium is not compatible with his chemo, so they cannot be run through the same line, which means they had to start a separate IV today. It stinks because the whole reason he has a port is to avoid having to be poked so many times. The hospital has a vascular access team that solely does IV access and they are really good and fast. Drew did really well also. While he still screamed and cried, he sat fairly still without us having to hold him as much and instead of just yelling at everyone, he stopped and asked, "all done?"
These moments are heartbreaking. It is so hard to watch your child scared and in pain. I had a real hard time when we started chemo last month dealing with the fact that here we had what appeared to be a normal, healthy, active 3 year old boy who sure didn't seem sick and now here we sit pumping poison through his veins, making him sick. It just doesn't seem right. And then to feel like you really don't have a choice in the matter either, this is just what has to be done.
The day we arrived, we got checked in and settled in our room and they got the chemo started and then neurology came and hooked up the EEG. When they were done, it was quiet, dark and calm in our room. It was just me and Drew and as I was laying in the bed with him and he was playing on the iPad, he said, "Mom, what the doctors doing to me?" It was the first time he ever really questioned what this was all about. I explained things to him and he listened quietly as he played.