Today was a little bit better of a day. Drew was actually feeling up to getting out of bed and went to the play room a couple of times. His Uncle Brian and Aunt Heather came to visit with his cousins Tyler and Natalie which helped to lift his spirits.
Since I went home again for the night, Brooke was able to come back with me to spend the day and visit with Drew. She spent a lot of time in the playroom painting pictures and learning about how Drew's port works and about why we are here. The cast of Disney's Beauty and the Beast, which is in town, came and did a short performance of the play which she really enjoyed also.
After not eating a thing yesterday and even rejecting his fruit snacks, which those of you who know Drew, know that before the bag is even fully opened he has the whole thing dumped into his mouth, he actually ate a couple of pieces of fruit and wanted Cheetos!
My mom and Randy's mom were home watching the other 2 kids, so they brought Dallin and the baby down for a quick visit and to pick Brooke up to bring her home. I hadn't told Drew that they were coming just in case he was asleep and missed them, I didn't want him to be upset. I was trying to get him to take a nap when they got here, so they didn't come in the room and were waiting outside the door and Drew sat up and said, "I hear Dallin!" He recognized his little brothers voice even in a strange place amid all the commotion and chaos and was so excited. His eyes then filled with tears, but he didn't make a sound and I know it made him think about wanting to be at home all together again.
Last night Drew did not want me to leave and this is how he fell asleep. That's my arm he's hugging so tight.Saturday, July 9, 2011
Again, today has been a rough day. Drew doesn't have any appetite at all, but at least hasn't been vomiting quite as much. The second anti nausea medication that they added makes him so tired, but he fights sleeping, so he's just very cranky. Anytime a doctor or nurse even just walks in the room today, he's crying and screaming and then when they try to get near him it's a fight to get anything done. When he does finally fall asleep, they try to get everything done then. They have learned and are very quiet and almost tiptoe around like not wanting to wake the sleeping bear!